Zachy's Check-up

On Thursday I took Zachary to the ped for a checkup. We like to do his every 6 months rather than yearly. With Zachary, alot can change quickly! He weighed in at 55 lbs 12 oz. HOLY COW. We didn't get a length on him but I know he's still around 38 inches or so. He seems to have grown a little but not much. All systems checked out perfectly, with the exception of his kidney function which is still struggling. He's still running about 50% function right now. The only other negative thing is his puberty is also progressing more. We haven't been able to start his Lupron shots yet due to his illnesses and the kidney problems but now we are sort of in a position that we either have to do it now or not at all. I asked his endocrinologist about whether or not it was known to cause issues with the kidneys and he said he didn't know of any documented in children but he did with adults. One adult ended up with kidney failure after treatment with Lupron. We plan to discuss it more with him at our checkup at Vandy in April and decide from there. If there is even a chance that it will worsen or cause his kidneys to fail then we are going to go forward with puberty progression rather than the shots because its just not worth the risk. I hope the endo can give me more insight at our visit next month.

While I was there I decided to ask her about Christian too. The child never eats and if he does, he eats like a bird. I don't know how he continues to grow like he does. He lives on yogurt, nutrigrain bars, chicken nuggets, mac n cheese, yams, turkey, pb & j and fruit. He will not eat anything that resembles a vegetable at all. Most of the time when you try to get him to eat he'll say "no, not right now!" or "not soon!". Thankfully, the ped said thats totally normal for his age. And that he's eating alot more than some other kids she knows, some who will only eat cheese! He complains sometimes that his tummy hurts but I really think that is just a way to get medicine. The child LOVES medicine and will take anything you give him! His new thing at bedtime is my tummy hurts, I have a temperature, I need medicine. And yeah, nothing is wrong with him! He just loves medicine! Wierd kid.

I will leave you with a Christian funny. Yesterday he came to me with a booger on his finger. Yes a BOOGER! I told him to go to the bathroom and get a tissue to put it on. He went off toward the bathroom and came back within seconds bawling his eyes out saying "I can't get a tissue anymore". I say, why not Christian? "I can't get my booger back!". What happened to your booger Christian? "Its in my mouth!". He was crying his eyes out because he couldn't get his booger back out of his mouth to put on the tissue. I bust out laughing and he's looking at me like dude, its not funny! Little boys! 

The kidney saga continues

I took Zachary to the kidney specialist a little over a week ago. He basically said there wasn't anything we could do but wait and see. Right now Zachary's kidney function is around 50%. He said that won't kill him but if it gets worse, we may be facing some tough decisions regarding dialysis and life expectancy. Please pray for healing for Zachary's kidneys. We won't be checking weekly labs now but monthly. I pray that we start to see some improvements soon. He worries me so much.

Baby Boo

So I've decided to call the baby "boo". Don't ask me why, maybe I've been watching too much Monsters Inc with Christian. Thats his favorite movie of all time. Anyway, had a dr appt today and they did an u/s since we hadn't done one for 3 weeks since the miscarriage. The twins sack is still there so that must be why I still have some spotting. But baby boo was dancing and squirming and wiggling around. Its so amazing that at almost 11 weeks, there is such life in there. Everything looks good for now! Here is boo at 10w5d and my belly at 10w2d.

Happy 7th Anniversary!

7 years ago today, Cam and I were married in Nashville. The weather that day was absolutely gorgeous and in the 70's. Today's weather was exactly the same. Happy Anniversary honey!!

Oh baby!

There is soon to be a new addition to the Beachley household and thats another baby due in October. We found out we were expecting on January 31st but I decided to keep it quiet until I saw the heartbeat. We found out a couple of weeks later that there were twins, however, sadly I lost one of the twins about a week ago. On March 1st, I saw our baby's heartbeat and everything was measuring right on schedule. I will be 9 weeks on Wednesday and the sickness started a few days ago. I am nauseas about all day long! Here is the u/s of our wee one taken at 7w5d. His/her heartrate was 154. Almost identical to both brothers at that stage.

Picture of the Day.....

My little Christian is a riot. He is also getting into things and making messes like you wouldn't believe. Today he brought me into my bathroom and with great joy and glee said "Look Mommy! Stickers!". He was SO proud of himself for this art work!

Sweet Zachary....

I tell you, sweet little Zachary can never catch a break. If its not one thing, its about 10 others with him. His cardiologist called about his lab work. His triglycerides came back at 684!!!! Obviously, the increased dose of fish oil  hasn't helped at all so we are doubling it again to 4,000 mg a day. We will do labs again in 2-3 months to see where we are. If things don't improve, he wants to add in a medication. He also said that Zachary's particle size was about twice what it should be. Normal for his age is around 75, his was 138. Now if we could just get his lipids and his kidneys in check we might be on a roll.